I Never Was Any Good at Limbo!

As a matter of fact... I HATED limbo! I was never any good at it! That same pattern has continued into adulthood... only this time... it's a different kind of limbo.

Kayleigh has not recovered well from her incident last month, despite the medication that she's been put on. We've been to the doctor at least once a week and on the phone with them several times a week. We are at a point where our family doctor here just can't help her anymore and isn't comfortable making any more medication changes. They were able to get her appointment at Duke Medical Center moved up by 4 weeks to May 27th, but until then.... we are in limbo and it just plain stinks!

Kayleigh is still dealing with constant headaches due to the medication trying to fight the crazy low blood pressures and heart rates. She's also dealing with on and off low oxygen saturation causing her to fatigues easily and just feel like sleeping a whole lot!

Through it all... she is trying to stay active and be as normal as possible. We did make a few changes to help her handle day to day activities. She is now "Homebound" for her Reagan High School classes. She still gets up and goes to the Career Center in the mornings, but she then comes home in the afternoons where she does the rest of her classwork. There is a teacher that is assigned to her that will spend 4 hours a week tutoring and administering tests to her - here at home. This should allow her to get rest when she needs it, but still do her work and not be penalized for missed school days (she has missed a LOT of school).

I haven't said much about him lately, but, Devin has been absolutely fantastic with whatever Kayleigh needs! He has driven her home from school early, to school late, checks on her throughout the day, and even sends me text updates on her if she's not doing so hot! He and his date are going to prom and dinner with Kayleigh and her boyfriend. Devin has even helped to arrange for Kayleigh to have a manicure/pedicure this afternoon!!! I have always known the 2 of them are close siblings... but seeing how he has supported and loved her through all this is absolutely sobering and brings tears to my eyes.

Mike and I are doing fine. Mike, as always, is a rock and never lets anything get to him. He cares and I know he worries about her, but he doesn't treat her any differently now than he did before this all started. I'm the one who says "How are you today?" and he's the one that says "Do the dishes!". LOL! Most importantly, he's the one who says "there's no sense in getting upset and worked up if there's nothing you can do about it... we take it one day at a time". (Sometimes, this man is pretty smart!)

In all seriousness.. during our wait to get to Duke, we are learning many things.

- We are learning patience... patience in waiting for God's perfect timing.
- We are learning trust... trust that she will be taken care of in His hands.
- We are learning to accept blessings... this is a hard one! But we have learned to accept the blessings of those that have brought us meals, prayed with us, and those who have gone out of their way to help us!

We are learning to just sit back and know that God is in control, we are not.