Sunday, July 17, 2011

Update on Kayleigh

(A little note left on her wipe off board from big brother Devin!)

Today was a hard day for Kayleigh. She really wasn't feeling well and I think she is starting to feel a little down. I would too... tomorrow marks 1 week that she's been in a hospital!

Kayleigh did have a few surprise visitors that got a few little smiles out of her (thank you Michelle & Eddie Schapira, and big brother Devin!), but she didn't really interact a whole lot with anyone. Then around 5pm the "witching hour" started and she went into another long run of irregular heart rhythms that set all the monitors off like crazy. When they finally ended she was left with a bad headache and dizzy spells.

Tomorrow HER primary EP Cardiologist will be back and will see her first thing. She is excited as she knows that he knows her best and will be able to give us a good game plan on how to help her feel better... whatever it takes!!

Know that she is getting GREAT care here at Duke Children's!! All of the doctors, nurses, and support staff have been fantastic and very very attentive to her needs.

We continue to be grateful for the outpouring of love from our friends at River Oaks who have stepped in to take care of Chase and Paige, to love on and pray over Devin, planning meals for when we get home, and all those who have continuously prayed for our sweet girl; and our family! We simply can not come up with the words to express how we feel to each and every one of you!!!

Much love to all!

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