As many of you know, Kayleigh was diagnosed with a complicated form of Dysautonomia this summer after some testing on July 5th followed by a prolonged hospital stay. I ran across these videos on the DINET forum and it explains Dysautonomia perfectly. If you have walked this path with us or if you know Kayleigh well and spend time with her regularly, I ENCOURAGE you to watch this video to better understand what she goes through on a daily basis. The series is long (they are in order here)... but it is very worth it!
Part 1
Part 2
Part 3
We hope this helps! It certainly has helped us... we are learning more about her disease each and every day!
Thursday, October 20, 2011
Video Series on Dysautonomia
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment