We "met" Kayla through an online support forum called "Dinet" almost a year ago. It's a place for patients and families of Dysautonomia patients to come together for advice, support, and friendship. For the last several days, Kayleigh has been facebook messaging and texting Kayla like crazy because Kayla has been in a children's hospital after an acute episode of her disease. She's had a tough time this week with unanswered questions and doctors who just know little about the disease.
So.... Kayla's Mom and I arranged a big surprise for this afternoon..... the girls FINALLY met face to face! Kayla's Mom, Crystal, met us in the lobby and took us up. She looks more surprised than Kayla! I think Kayla was just in shock and not sure what to think!
The girls talked for almost 2 hours about their disease, what they've experienced, their frustrations, what's worked for them, what hasn't, and more! I'm so very thankful that they have eachother to lean on with such an "invisible" disease that isn't understood by many! Certainly a blessing for them both to have eachother!
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