We posted a few months back about Michael going to UCLA this spring to participate in a clinical research study for Chronic Traumatic Encephalopathy (CTE). We are currently scheduled to travel there at the end of the month to meet with a neurologist to have an evaluation done to get a "baseline" of where he is so they can monitor him and note his changes. The benefit of going is that when a clinical trial opens.... he will be automatically included.
Well another door has opened that we are considering. We have been in contact with a team of neurologists, neurosurgeons, and other doctors about a new clinic opening in Chicago this upcoming June. The clinic's goal is to assess and treat patients who have brain injuries and suspected CTE (remember... it can't be 100% diagnosed until after death). They will also be conducting studies on brain injuries and the role they play in CTE, Alzheimers, and Parkinsons.
We haven't made any decisions yet on the Chicago trip.... but in talking to the team via email it appears that the benefit of going there is they will be running a clinic and be able to TREAT Michael.... not just have him participate in research.
The cost associated with going to Chicago is pretty high...... time of work for me, travel arrangements for all of us, plus the copays and deductibles associated with that kind of care. If you feel led to help with the costs, the link below takes you to the fundraising page.
Our prayer requests right now revolve around all of that...
- PRAISE that he has these doors opening and that we are finally feeling like we are getting somewhere!!
- Prayer for financial provision to be able to MAKE these trips
- Prayer that Michael will be up to traveling on either trip and the toll on his body will be minimal
- Prayer for peace to accept whatever the outcome is of both of these trips
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