Infusion Day

While we wait for UCLA,Michael's neurologist decided to try an IV infusion to break the cycle of headaches, atypical seizures, etc that he has now been in for more months than we can count.  The idea was to at least help him feel a little better and function a little better.  They ran a series of IV meds....   Zofran/Benadryl to be sure he didn't get sick, Decadron to reduce the inflammation in the brain, Depakote to help with the constant migraine type headache AND it's to help with any possible seizures we can't see, and a ton of fluids.  .  Unfortunately.... it didn't work and actually was feeling a bit worse after.  Not the result we wanted.  

After talking to the infusion nurse manager who is very familiar with Michael, we are all are in agreement that UCLA is the next step.  Unfortunately, we are still $1500 shy of being able to go and we are facing the decision to reschedule yet again.  Michael is feeling defeated and worn through it all and it kills me to watch him suffer and not enjoy things that we all take for granted. 

Please keep praying....  for Michael's health, for financial provision so that we don't have to reschedule, for us as his caregivers, and for the doctors that he sees.  Also, please continue to share this link for others to pray with us and if they feel led to help us get there.