Light at the End of the Tunnel

This is our girl, sitting up on a Sunday morning feeling great! PRAISE GOD!

We also are starting to feel like we see the light at the end of the tunnel! This is what all has happened this weekend...

1) We agreed to let her be seen by a psychologist yesterday morning (the last few weeks have really taken a toll on her). The psychologist said Kayleigh is "delightful", an "old soul", and that she thinks she will be just fine because she clearly has a great support system of friends and family. This little bit of encouragement almost IMMEDIATELY lifted Kayleigh's spirits! To be told you're not crazy is a big thing!

2) The IV Zofran has really helped her nausea and allows her to eat WAY more than she's been eating and her energy level has really improved. She has gone from only able to walk 1 or 2 laps around the unit to 6 laps before she fatigues. Over the weekend, we have successfully transitioned her from IV Zofran to oral Zofran without any trouble! One step closer to going home!

3) Watching the heartrate/blood pressure trends over the last few days finally had them see what we have been seeing and they have decreased her Midodrine dose to 7.5mg and we are starting to see more stabilized blood pressures and heartrates.

4) The multifocal and left ventricular PVCs are still present, but they are less intense and she is getting through them without the miserable scared to death look on her face.

And the best news of the day....

5) She will have a 24 hour holter monitor put on tomorrow morning and taken off Tuesday morning. We hope they read it Tuesday, but it may be Wednesday before we get the results. If the monitor shows that the nature of the PVCs has improved then we get to take her home SURGERY FREE Tuesday or Wednesday!!

So good to finally feel a bit of relief, see a smile on our girl's face, and to see the light at the end of the tunnel!