Tuesday, April 28, 2009

And The Wait Continues...

Look at this sweet face... so full of smiles! Little does she know how worried she has her parents right now!!!

We took her to her appointment this morning. We didn't get the resolution we had hoped for... instead we learned we will have to wait some more.

The good news... the nodules don't appear to be growing. They are posterior to where the cervical lymph nodes (located in the rear part of the neck on each side). It is possible that her lymph nodes simply lay slightly farther back than most. That then raises the question of 'why are they so large, and why haven't they started to get smaller yet?'.

But new problem #2 has them thrown...

We learned today that her white blood cell count is too low. Pediatric normal range is 5.0 to 10.0. Above 10 indicates infection is present in the body. Below 5.0 can mean many things... but above all it means that she is at greater risk of infection and her white blood cells aren't producing the way they should. It can also be auto-immune related... hmmm... I've heard that word before with her big brother Chase and all his stuff!

The doctors decided that they will do no biopsy, removal, or anything of the such until she's seen by a hematology. I'm sure I turned 10 shades of gray when they said that word... 'hematology'.... just sounds scary! They did reassure me that hematology is the best place for her to go to be properly diagnosed. They treat blood related illnesses as well as lymph related illnesses, and that yes, they can be related.

Another plus... we were told again today that they still feel it is "more than likely benign despite the low blood count." That's what we're holding on to!

So, we are now waiting for her referral to hematology to find out what's next.


1 comment:

Mandy said...

OMG! The worrying never ends. Prayers for you all!!