Tuesday, July 19, 2011

Santa Claus Came Today!!!

The highlight of our day was Santa Claus! Yep... he was HERE! The look on Mike's face when Santa walked in the room was priceless and Kayleigh smiled great big! She even got a nailpolish gift set!

Other highlights of the day...

- She was deprived from breakfast and lunch for a radiology test that involved eating egg whites with a radioactive nuclear material in them... they ended up being FLORESCENT YELLOW! But she choked them down like a champ!

- Dr. Kanter came and talked to us about the findings of her halter that they did over the weekend. She had over 900 PVCs on it that were multifocal, some came two at at time, and some even came 3 at a time. He said he couldn't explain it, but wasn't comfortable with it and is looking into a few things.

- We started working very closely with nutrition to work on strategies to help her with meals. Through all of this she just hasn't been eating well. It was very comforting tonight to hear the doctor look at her and say "you do not meet the criteria for anorexia". I wanted to look at her and say duhhhhhhhhhhhh!!!!!!!!! Think of it like a cancer patients... they just don't feel like eating so they have to come up with strategies to help out a bit.

- She had a special EKG done called a Signal Averaged Electrocardiogram that apparently gets down to the nitty gritty of each heartbeat.

- She also had a special echocardiogram done with some extra measurements. It was so cool to watch!!! Don't have a clue what all I was looking at.... but it was really neat to see the heart pumping and blood swooshing around!

- And did I mention Santa came?

We hope to get some results back tomorrow. Still talking about her being here several days. She's a bit sad about it, but is doing ok!

Now... time to finish our mother/daughter mani/pedi!

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