Saturday, January 30, 2016

Finally!!!!!!!!!!!!!!!!!!!!!


Thought I updated here...  but looks like I didn't.  Yikes!

After 3 years of fighting for it...  we FINALLY got the official - in writing - letter stating that Michael's disability was fully approved!!  I can't tell you how much of a relief this is for us!  The part that stinks is the letter says it will be another 60-90 days before he starts seeing regular payment.  Aye-yi-yi!!  Still blows my mind how our system works (...  or doesn't work!).  

As far as how Michael's doing...  he's doing ok.  We were able to enjoy Christmas with our entire family - including Devin - and he even went almost 2 weeks without any sort of seizure event.  What a blessing that was!  Since then he's had a few, but nothing too bad.  I think we're finally learning how to stop them, or at least lessen the severity, when we recognize them coming.  

Barrow got approval from our insurance company for him to be admitted into the EMU (Epilepsy/Seizure Montoring Unit) at St. Joe Hospital to see if they can identify what kind of seizures he's having and where they are stemming from in the brain.  He'll be admitted March 4th for a 7-10 day stay.  He'll be taken off all of his seizure meds 3 days before admission and he will be there for 7-10 days.  We were told "he WILL have a seizure before he's discharged"...  yikes!  Hoping he has it early on so he doesn't have to stay the full 7-10 days or they are going to have one cranky Michael Lyons on their hands!  LOL! 

We are grateful to each and every one of you who continue to love us along this journey!

Michael and Michelle

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