Status Quo

Things here are pretty much status quo.  

Mike did see the new seizure doctor (new to us anyway) at Barrow in August.  I cautiously say we really liked him because we had a bad experience at Barrow when we first moved here a few years ago.  Dr. Saghal had done his homework and knew Mike's entire situation and then assessed him.  He ended up having his attending, Dr. Schusse, come in to the room to be sure they are doing everything they can.  They aren't going to do any new EEGs as of yet because they got all the info they needed from the EEGs Mayo did.  Dr. Saghal IS referring Mike to Dr. Knievel who is the doctor we were hoping to get into to begin with -so that was a relief.  She is supposedly the best in Phoenix when it comes to headaches due to trauma.  Dr. Saghal also made a referral for Mike to see Dr. Cardenas at the Barrow Concussion and BRAINS Clinic.  So now we just wait on an opening to go in.

Mike's still having seizures fairly regularly.  For the first time ever I was able to catch what happens to him on THIS VIDEO.  (It's also in the photos/videos section of this website.)  I will warn you, it's not easy to watch.  But it gives you an idea of daily life for him.  I sent it to our primary care doctor the next day and his reply was "Wow....  just wow!  I had no idea it was that bad...".  I'm glad we have it now so the other doctors can see exactly what I try to describe and the disability court can see exactly what happens!

I guess the biggest thing that's happening right now is we have to go about 3 weeks with NO HEALTH INSURANCE.  We filled all of Mike's scripts the last week on our old insurance and will be buying our own policy October 10th.  We have to wait because it's crazy expensive to purchase your own.  We do have the option of buying the COBRA through my last employer, but it's even more expensive than buying our own.  We are hoping and praying we can get through the next 3 weeks without needing a doctor!  

So - the prayer requests right now are

1)  We won't need insurance this 3 weeks! 
2)  We get a disability hearing date SOON!
3)  We hear from Dr. Knievel and Dr. Cardenas' offices soon with appointment dates

Much love to all!!
Mike & Michelle